Immune Support article abstracts -- 01

ImmuneSupport.com article abstracts -- 01

A. The Sinatra Protocol made a big difference
http://www.drmyhill.co.uk/article.cfm?id=373
Sarah Myhill Limited

L Carnitine
Alpha Lipoic Acid
Co enzyme Q10
D Ribose
Magnesium

Vit B3 ...

Chlorella, taken at night helps your body's natural de tox.
Absorbs loads of rubbish. Take extra water when using. ...
Thyroid: I was lucky enough to find a doctor who understood that the key to Fibromyalgia is the Thyroid ... and what a difference Armour Thyroid has made in my life ... no more pain when the levels are high enough!!! ...

Ambrotose: The one single product that has helped me the most is called "Ambrotose" from Mannatech. Until I started taking it, I had been bed-ridden for two years with CFS. After about four months of taking Ambrotose, I was able to get up and be out of the house for short periods of time. I'm now working part-time again. ...

Mannatech, Canada
[A retail customer may become a Member by paying a one-time fee of $10 to cover administrative costs.
This fee will be waived if a product order is placed at the time of application. The Member receives a discounted price off the suggested retail price of all their product purchases and can participate in the optional Gold Plan Automatic Order program, to receive an additional discount off the Member price. ...
-- only sold through Associates who get substantial discounts on automatic orders, there are a series of Mannatech products with varying prices and strengths per unit.

Ambrotose: For Immune Support
A component of Mannatech's proprietary Optimal Health System, new and improved Advanced Ambrotose™ complex in powder and capsule form is designed to better support effective cell-to cell communication. This enhanced glyconutritional formula now includes arabinogalactan as a saccharide source, as well as a more concentrated source of Undaria pinnatifida and gluten-free rice starch in place of oat fiber. This is the most balanced and richest source of glyconutrients Mannatech has ever offered.]

First thing is to prioritize; make getting healthy your full-time job.
Take control. Read everything you can find in the hopes that some of it will help, but realize that you have to figure out for yourself what works for you. Every body is different, with different symptoms and different needs.
Bank your energy.
Each morning, figure out how much energy you have and what you could do with it, then do only half of that and bank the other half of your energy. It takes energy to heal, and if you spend it all, you won't have any left for healing. Rest as much as possible; if you are doing anything else (talking, knitting, anything) you are not resting! ...
Eliminate stress as much as possible.
Find supportive, not toxic, people to be around. Lower your standards and expectations as to what needs to be done. It won't kill you not to have a floor clean enough to eat off of; how often do you eat off your floor anyway? Prioritize your energy, delegate tasks if someone else can do them, don't do what doesn't need doing. Save your energy for healing, rest when you need to. ...

Milk: Another thing that helps with brain fog is staying away from milk protiens.
Also helps with some achiness that feels like it is in the bones. ...
IVMT: The only thing that has worked for me after 3 years of many days and dollars spent is IVMT (IV Micronutrient Therapy). I receive a weekly injection of vitamions & minerals (Magnesium, Calcium, Vitamin C etc. and it immediately clears my brain fog and for the remainder of the week I can do about 80% of what the old me could do.
If I skip a week - I fall back quickly and then it takes a few weeks to return to 80%.
When you get the injection, it feels like a warm blanket has been thrown over you! It's $75 a shot but I highly recommend.

Be careful of IVMT injection -- 10/25/06 03:07 PM
This injection does not work for all people.
My first and only injection almost killed me.
I remember my blood boiling and pressure dropping rapidly. I had all nurses and doctors surrounding me and the head Dr. there with an adrenal syringe. Scaring thought looking at that syringe. I was a rare exception - granted - but just start slow and be aware of everything happening to you. Stop the IV if you have any doubts.

I have had about 50 IVMT injections in the last year and half at the Yale Integrative Med Center at Griffin Hospital in Derby CT under the care of Dr. David Katz. I hate needles and have never had any issue with these injections which take about 10 minutes to do.
One thing they do before starting is a skin test for Thiamin reaction
- I was positive so I receive a non-Thiamin (Vitamin B6?) version. ...

"decompression surgery" -- ritamarie
I suffered for 3 years with CFS and FMS ... the only thing that worked for me was meeting Dr. Dan Heffez a neurosurgeon from Chicago. ... suggested that most people with CFS and FMS usually have structural problems in their neck area causing the spinal fluid to be interupted and that he finds that once diagnosed properly surgery does help to relieve the constricted areas. ... I contacted his office and forwarded him my "normal" MRI reports of the head and neck. Upon review he called me and told me that my MRIs were NOT normal and that I did have a constriction (called a Chiari Malformation") in my neck, even though me neck didn't hurt me too much he saw that this was the area where I had a problem.
I flew to Chicago and went through two days of intent testing and he and a team of doctors verified that I was a good candidate for "decompression surgery". Two weeks after my surgery, my symptoms began to go away. I am 5 years out from the surgery and have my total life back again. ... would love to give anyone info on how to get in touch with this wonderful man.

Make a List:
When I am stuck in a flare, or if I'm just stuck in my own head, I tend to get very hard on myself about all I am not able to do. I have found that if I am able to make a list of all the things I have done to contribute to the functioning and well-being of myself and my family, it really adds up to much more than I would have ever guessed. I give this list to my husband so that he can see that I haven't "abandoned" him to cope with everything on his own, but that my heart and mind are always working, even if my body can't. He really appreciates these "reports" as well.
I add every single thing, whether it's "got dressed" or "reviewed problem with daughter's teacher" or "shopped online for Christmas presents" or "read article on CFS, made notes to ask doctor" or "designed dress in sketchbook to keep creative juices flowing". This list makes both of us feel that I am still part of the team, and that I haven't given up. If I were single, I would still do this, and it would seem almost even more important to do so, since I wouldn't have anyone recognizing my efforts except for me. (Not that my dh and kids are constantly doing this... :) ...

B. RIBOSE --- 10/27/06
Valen Labs and Dr. J. Teitelbaum as he has discovered that ribose (a sugar) irridicates pain in almost 70% of cases. This has been true for me:
RIBOSE, 5 mg, 1-3 TIMES DAILY with food has saved my life. I am 50 to 75% better in terms of pain. Naps have decreased.
There has been a slight downfall with it in my case.
You may be able to avoid it. I am very petite at 5'2", 112 lbs.
It can cause hypoglycemia, anxiety, and panic attacks if taken at too large of a dose per body weight. It should be taken with a high carb meal.
I saw a drastic change in my life in 3 weeks.

C. MANNOSE, another sugar, has gotten rid of about 90% of the inflammation in my bladder. I had gotten so bad that I was afraid to get on an airplane. I might have a "bladder attack" and no tub to get in. Every bladder attack meant 5 hours in the tub drinking tons of water and taking codiene.
Have NEVER had an attack since the D. Mannose.
ENADA NADH has D. Mannose in it.
So, you can increase your mental clarity and energy at the same time!

D. Nature's Sunshine Chromium GTF (no other brand worked) - gave my muscles the energy to get through the day after feeling like each limb weighed more than 100 lbs - also helped greatly with severe hypoglycemia
E. Standard Process Magnesium Lactate
(no other brand OR form of magnesium worked)
- gave me great relief from the anxiety and emotional roller coaster, plus helped me to sleep better and more
F. Nature's Sunshine Vitamin B6
(again, no other brand worked for me) - rid me of my constant palpitations and arrhythmias, and even "cured" me of mitral valve prolapse
Brain fog has been helped tremendously by a few things - not sure which had the most effect: G. The Lecithin from Lewis Labs, H. L-Tyrosine, I. L-Phenylalanine, and I recently began using J. Ultimate Brain Support by Real Advantage Nutrients. ... Vit B3 ...

K. ... Metabolic Typing Program.
WAIT! Before you say "I read the book, took the test, did the diet, and didn't feel any better," let me explain that I'm talking about doing the comprehensive testing and working with a specially trained counselor. After losing 2 careers, and being almost bedridden for 2 years plus horrible trouble for a year before and after, and struggling since age 3 with this hideous dysautonomia, I finally have a full life again. Perfect? No. But my bad days now are fewer and much better than my good days ever used to be. And I have a strong suspicion that if time and money allowed me to follow this program at 100% commitment for another couple of years, I would feel awesome every single day.
Through a series of at-home tests (you buy the kits and equipment, then send in your results) plus a hair analysis and a huge questionnaire about your symptoms, they put together a long report about you. Your body chemistry is individual, and they understand that and work with you as an individual - they don't care what label has been put on your health. They go for the cause - what is out of balance - then teach you how to eat and add supplements accordingly. It's the most amazing thing I've experienced, and completely reinforces what I believe, that illness is due to imbalance and ONLY thru whole-food nutrition can we heal, not poisons better known today as prescriptions.

After just the 2-day pre-test meal plan, I went from more than 5 years of eating every 90 minutes due to hypoglycemia (yes, even after years of no sugar or fruit!) to just 3 meals a day. After just 2 weeks on the nutrition plan I felt an upswing in my energy and mood. After 6 weeks of that plus slowly adding supplements, I could see how dramatic this could be. I then experienced 6 or 7 solid weeks of feeling energetic and motivated! When I slid backward, I retested and learned that my body chemistry had shifted so much that we had to rework our plan (that is to be expected). Again, the improvements expanded. And on and on.
You must be vigilant to make this work. But it is OH SO WORTH every minute, every penny and every bit of effort to stick with it. Gang, I can't urge you strongly enough to look into this. It's about being healthy for life, not just treating our wild symptoms. As I said above, it may not cure anyone, but you do NOT have to continue losing jobs, partners, families, self-esteem and more. Your illness CAN become part of your PAST!

L. Thyroid tests: it's been my experience that primary care doctors will often just test your TSH, but your T3 or T4 can be messed up (and won't affect the TSH) and can make you feel terrible. If your dr. does a thyroid panel it will include your T3 and T4 levels. My dr. found a correctable problem that would have remained invisible with just the TSH test. ...
M. Spiru-Tein High Protein Powder.
I have this shake every day.
To suit your taste add the ingredients in 1/4 to 1/2 cup intervals except the powder ...
Fresh frozen Blueberries,
Strawberries,
Unsweetened Apple Juice,
Plain Yogurt,
and 1 scoop of this powder, Nature's Plus Brand
Spiru-Tein High Protein Powder

( Available at GNC online) It comes in Strawberry, Vanilla & Chocolate flavors. I am partial to the Vanilla in this shake. I have lost a tremendous amount of weight by supplementing with this and felt better every day before the weight loss even started. It is rather expensive so I wouldnt start it until you know you'll be able to keep it going. Years ago, when my disease symptoms first started, I had one every day, and then finances dictated I couldnt afford to stay on it. ...
[Natures Plus,
2006-12-19 On Sale 2.4 pounds for US $28.50]

N. ..supplement called immunical .. [Imuplus]
It was discovered by two doctors ... breast milk ... if you could just try it for one month ... what do you have to lose ... I take one packet of the immunical platuim a day ... if i miss taking it for two days .. i get sick .. so i up to two packets a day until i feel better ... the web site is immunitec.com ...

O. Cheney's protocols
Phase I ...
Phase I is usually triggered by a virus.
They stimulate RNase-L, an anti-viral enzyme.
The reason it's bad is it destroys messenger RNA which disrupts protein synthesis in cells. This is vital. There are like 50,000 proteins in your body doing stuff. RNase-L stays active too long disrupting protein synthesis everywhere and eventually the liver is affected (has hightest protein synthesis rate in the body) and can't detoxify the body.
Phase II:
the body is now being affected by toxins the liver can't remove or can't remove fast enough.
Phase III:
now toxins not only inhibit cell function, they invade and injure the central nervous system, doing damage to brain, spinal chord and hypothalamus. These centers regulate heartbeat, blood pressure, body chemistry, metabolism, in other words, everything. HPA axis is damaged causing hormone imbalances.

Don't panic, Cheney says damage is not permanent.
there's really a lot to this but I'm sacrificing detail to conserve neurotransmitters!
Cheney says to add a new supplement every 2 weeks to make sure everything sets well with you. If you're in really bad shape, feeling horrible all the time, this is a good idea. At least until you start feeling better.
In the first part, I have not worried about everything.
This deals with mostly drugs for immune system, depression, really bad cognitive disturbances, anxiety and mental stuff. I couldn't read (only for a minute or so at a time) but was trying to avoid any brain drugs. Plus I was not depressed even though some dumb shrink tried to convince me I was.

Treatment for Phase I deals with:
Ampligen
Anti microbial therapy
immune modulation (you want th2 to shift to th1 because activation of th1 will reduce RNase-L)
anticoagulant therapy
I had already done the anti-viral chemotherapy for hep c; pure hell but that's another post.

So you do what you have to with regards to your particular infection, anti virals or whatever. And if you have a coagulation issue with blood, you address it, you may need heparin. The supplement for too thick blood is nattokinase but I haven't tried it. I know someone who used it and it worked.
And address the possibility of parasites, or rather, take something for them, we all have them. You could do a formal cleanse and take some supplements for them. Black walnut, wormwood and cloves freshly ground is a good combination. Do for about 10 days then stop for 2 weeks and do again if necessary.

If you have liver issues, the black walnut may be too much.
Select something else or start with small doses to see if it makes you feel bad.
The liver is very delicate. If you take something it doesn't like, you'll know it in a few minutes. Grapefruit seed extract (not to be confused with grapeseed extract) is a good one. It does not interfere with medication like grapefruit juice. Olive leaf is another good one. A good quality colloidal silver or a zapper are other things you can get.
I don't see any point in getting tested for parasites.
The tests are not reliable and they'll just want to give you antibiotics which you should avoid unless your life is threatened.

If you need pointers on treatment for these things above, look at his Treatment Overview for Phase I. I got rid of my virus but I believe my immune system was still out of balance. So now I'm working on shifting it back to normal. Again, there are tests but I'm assuming it's th2 overactive with RNase-L doing damage.

Supplements for shifting th2 to th1:
transfer factor
deer antler velvet
IP6 - I'm using
colostrum
beta glucan
probiotics
chlorella (also for heavy metals, esp mercury)
noni
neem
dhea
pine bark extract is also pycnogenol (same chemicals)
glutathione - ... very important

Glutathione - main body detoxifier next to growth hormone.
It's vital. Supplementing with pills or IV usually doesn't work, it's very poorly absorbed.
Take NAC (I'm using), maybe 250 mg 2-4 times a day. If the liver is in bad shape, this may be toxic to it, start slow. This will produce glutathione. So will undenatured whey powder, available from immunesupport. But if you have a dairy intolerance, probably not a good idea. I tried it and sneezed the next day. If you're in really bad shape, try just a little bit first! Like 1/2 teaspoon. If you're detoxing, that's one thing. But if you sneeze or get an allergic reaction, it will just harrass the immune system.
Same with Transfer factor which is from colostrum.
It made me sneeze. Glutathione is included here but it isn't only for the th2-th1 shift,
YOU HAVE TO HAVE IT TO GET BETTER.

One good thing about th2 being overactive - we don't get cancer!
The bad is that th1 is the one that gets rid of viruses which may be a problem if you have an infection.
Most of the above supplements I looked up and found myself, Cheney only mentioned 1 or 2 and a few drugs for the th2-th1 shift.

Treatment for Phase II
detoxification

B12
MSM
whey protein
TMG and phosphatidly choline
guaifenesin
growth hormone

Cheney likes the hydroxycobalamin version of B12.
I can only get cyanocobalamin, ...
I'm using about 5000 mcg in the butt every 3 days.
MSM - very good detoxifier.
I take 3 grams a day now. He says work up to 6-9 grams. Go slow or you'll over-detoxify. It is also effective against yeast, it melts it. Supposed to relieve pain well, too, but I don't have any so I don't know. Take alone on empty stomach, may bind with vitamins and especially minerals.
Whey protein for glutathione.
Here I'm adding TMG, trimethylglycine and phosphatidyl choline.
The first is an amino acid that reduces homocysteine levels.
This helps tremendously.
.. phosphatidyl choline is a potent liver protector and precursor to neurotransmitter acetycholine.
Guaifenesin is a drug I haven't used, he recommends for detoxification and pain..
Growth hormone, best detoxifier of all and repairs body, look at the posts for it.
That'll save me alot of writing. Can be a godsend or a ticket to hell, depending. I'm getting some and going to try it without a doctor's help. Probably a pretty stupid thing to do but I've been lucky so far. Cheney says if you do .2 mg once a week, 99.9% of people don't have a problem. Too much will crash you. Supposed to work really well with fetal bovine growth factors.

Phase III Treatment
Growth Hormone
Bovine Growth Factors

TREATMENT
1. Rest alot, duh. The thing is not to crash.
Mitos need to heal and waste needs to be cleaned from the body. see #8 also
2. Food elimination diet
- don't waste time with allergy testing, too many false positives. Main food intolerances are to: wheat (it's the gluten, also in oats), dairy, soy, peanuts, corn, eggs. Quit all dairy and wheat, no cheese, yogurt, bread, pasta, basically, anything yummy. There are tons of gluten free foods in health food stores, breads and crackers and stuff but don't get a bunch of gluten-free junk food with a ton of sugar. Example to eat: rice crackers, sesame crackers, veggie soups, turkey jerky. Big health food stores have lots of bins with stuff like dried fruits, spiced nuts and trail mixes.
3. Avoid sugar and nutrasweet, for sweetener, use stevia. No sodas.
4. Fat intake under 30 grams, avoid saturated.
Take fatty acid supplements, fish oil.
5. Avoid red meat, hard to digest.
6. Use digestive enzymes with every meal and betaine hcl with meats.
If you feel too full after eating protein, you probably don't have enough stomach acid.
7. If you can exercise a little, then bounce.
I do it on my bed, my legs and arms.
This is how astronauts recuperate from anti-gravity.
Helps immune system by increasing flow of lymph, too.
8. Be damn careful not to crash.
What I do is lie down every once in awhile if I'm "active" and I can tell by how fatigued I feel if I have done too much and need to lie still for awhile or if I can continue in a few minutes.
9. Expand blood volume.
I use Electrolyte Stamina twice a day or you can make one: 1 cup water, 1 cup seltzer water, 1 tsp sea salt, 1/2 tsp potassium with stevia or herbal teabag. Drink 3-4 glasses a day. Make sure blood pressure doesn't get too high.
10. Do breath holding exercise to increase oxygen transport: inhale for 4 seconds, hold breath 7 seconds, breathe out through pursed lips creating back pressure for 8 seconds. Repeat 8 times twice a day or until dizzy. Gets easier after awhile. Make take weeks to show improvement, important.
11. Any body energy work is good: acupuncture, acupressure, massages, reflexology, chiropractor, etc. All help central nervous system.
12. Meditation.
I use a light and sound machine, also. They have programs that put me to sleep in 5 minutes. Also, DVDs are available at Amazon that you put in your computer or DVD player and stare at and listen to binaural beats. There is also a free program download of binaural beats called sbagen for the computer savy that you can use on your pc with headphones.
13. Sleep is a must to make growth hormone.
5htp, valerian - an herb, melatonin -sleep hormone, these and sleep formulas you can get at any health food store. If you have to, use drugs. I slept okay as soon as I used the mitochondrial stuff (later) and desmopressin anti diuretic hormone for frequent urination at night.
14. Magnesium and taurine injections are good.
The Daily Energy Enfusion powder has 200 mg of mag glycinate and I take a mineral supplement with a total daily mag intake of about 500-600 mg. Magnesium aspartate 250 mg with potassium aspartate 250 mg twice daily. Easily absorbable forms and the aspartates help the body get rid of ammonia which causes damage.
15. Cheney says vitamins without iron and copper but I take Teitelbaum's Daily Energy Enfusion powder which has them. Can't live without it. I can't do full scoop at once or it overwhelms my liver, I do 1/4 scoop 4-5 times per day.
16. Extra Vitamin c 2-4 grams a day.
Make sure you take vit C and E with bioflavanoids or they can increase oxidative stress. see #21 Also should be taken with MSM.
17. Mitochondrial fuel:
CoQ10, at least 300 mg per day (oil based form is more absorbable and more expensive), magnesium 400mg - 1000 mg per day, acetyl l carnitine 500 mg 2-4 times per day, ribose 10-15 grams per day (I only use about 5 grams per day because it can cause hypoglycemic symptoms over 10 grams) and nadh sublingual first thing in morning. These are our cell engines, this is where energy begins! They create waste just like a car engine and probably have been damaged by buildup of waste.
Be very careful of hypoglycemia.
Ribose and coq10 can both lower blood sugar levels and also excess nadh can build up in your system and slow down gluconeogenesis in the liver, causing hypoglycemia. If you start experiencing hypoglycemic symptoms (especially in the middle of the night), you'll have to adjust all these accordingly. Stop them and maybe add back very small doses once the hypo is under control and you feel you may benefit from them.

18. Whey protein for amino acids.
Great tasting shakes, any flavor you want. Mix with water or rice milk. Since liver is down and can't store anything, don't take whole scoop at once, split up throughout the day. Use caution if dairy intolerance, whey protein concentrate may be best.
19. Alpha lipoic acid 100-300 mg per day. Major antioxidant.
20. Essential Fatty Acid supplements, fish oil, primrose oil, flax oil. You want Omega 3s and Omega 6s.
21. Bioflavanoids.
Quercetin (take with vit c), sylimarin (milk thistle), green tea, gingko biloba, pycnogenol, grape seed extract.
22. B12 -- 5000 mcg shot every 3 days or 10000 mcg once a week.
23. To reduce homocysteine:
folic acid, pyridoxal 5 phosphate (activated enzyme of B6), TMG, L Serine (amino acid, already in daily energy enfusion). I take folic acid 2x per day and TMG 2x per day.
24. ...

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